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Managing Chaos Lesson No. 4,491: A Friday Night Wheelchair Malfunction
My dad and I both heard the perfunctory snap as the right armrest on my power wheelchair lowered. I was about to get ready for ... Read more -
The Green-eyed Elephant in the Room
Let’s talk about the green-eyed elephant in the room. I’m a naturally jealous person. The therapist in me is convinced that my childhood has something ... Read more -
It’s Time to Stop Stigmatizing Lifesaving Tracheostomy Tubes
My family and I are gathered around the television when one of our favorite shows is interrupted by a commercial. An image is shown of ... Read more -
EveryLife Scholarship Fund Open Until May 7 for Adults With Rare Diseases in US
The EveryLife Foundation for Rare Diseases is accepting applications for a scholarship program that aims to help adults with a rare disease pursue personal goals through ... Read more -
Why My Teacher and I Faked My Detention in Middle School
Growing up, I was a fairly well-behaved student. I did my homework. I paid attention during class. I always raised my wand (my way of ... Read more
Researchers Discover Promising New Gene Therapy Approach for Spinal Muscular Atrophy
News
A new genetic approach to restore the expression of the gene that causes spinal muscular atrophy (SMA) in patients’ cells holds promise to effectively and permanently treat the disease, researchers suggest. The study, “Seamless genetic conversion of SMN2 to SMN1 ... Read more
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